Trying my best to Catch-UP!

Well here it is 4 July and I'm trying my best to get caught up here. I'm so sorry I've not been here before to let you know what is going on. I have been on my 'ups' and 'mostly downs' lately. I was so down this past week thought of nothing but how I can get help for my wonderful little grandaughter. You see she is in COMCARE here in Wichita, KS. That is an organization that is suppose to help children or just anyone that has a lot of mental or emotional issues or other children at risk issues. Since we have been here she has been in the care of her doctor that is also located at COMCARE for the last 4 years. She is diagnosed with RAD, ODD, PTSD, ADHD and has been sexually abused before we got legal guardianship of her at age 3 years old. She has an SED waiver. This means SED (severely emotionally disturbed), and since she has had some issues of saying she's going to kill herself or injure herself, they did put a SED waiver on her case so she can qualify for different programs with the medicaid card from KS. Well the other day her caseworker called me and said that she was leaving the program (COMCARE) and that another person at COMCARE was going to take over Austin's case. She called me and asked me to either come down there or they can come out to my house. It is much easier for me to go there and I asked her if I should bring my granddaughter to meet her new caseworker. OF course she left that up to me, so I thought it was a good idea to bring her along to meet her new case worker. I had no idea that anything else would take place, just the meeting of the new caseworker. I knew that they may have some paperwork to fill out but nothing like I encountered. When I got there with my granddaughter, I met her caseworker and we went to a little room where there was the new caseworker and another person. We were all females in the room, so I expected that we all would just talk about her (granddaughter's) care and future with COMCARE. Low and behold was I in for a shock! I was told that since my granddaughter has been "in the system" with the SED waiver over a year they were going to pull it. Said that since they were making so many changes and I guess with budget issues they said that she only was suppose to have the waiver for a year. It seems that the SED waiver is, according to them, is only suppose to be a short term fix, and on the kid's case for only a year. Well then they went on to tell me that my granddaughter had the SED waiver for three years and that they were going to pull it on the end ofJuly 2009. YES, in one month! I was shocked needless to say. The new caseworker for my granddaughter had a telephone number witten on a piece of paper and sort of pushed it towards me. It had the SSI telephone number written on it. Nothing was said that they would help me fill out the paperwork or anything. I went into complete shock needless to say. I told them if I had known that this was a "back stabbing issue" I would not have brought my granddaughter. I had tears rolling down my face needless to say. I was mad, up set and mostly in shock over the news that the SED waiver was being pulled. With this waiver my granddaughter gets her services she has now. They charge the services to the medicaid card from the state. This means in all, that my granddaughter will have NO services as she has now. She will no longer have an attendant care worker, no phsychosocial group she normally would attend, no case worker, I would have no parent coach, no wrap around services and no respite. I had never used the respite since I've been in the COMCARE due to they don't have it. This year they did train some of the caseworkers to be "respite" workers, but it was not an over night thing. It was more on the lines of attendant care worker. They would take my granddaughter or whomever the case may be, and keep them for a few hours then I'd have to pick them up. It was not what the respite care is suppose to be. Respite care is set for parents to get a break from the kid that has the emotional issue and to keep the family together. Well low and behold, this one is going to fall apart if we dont' have the servics that we can get for our granddaughter. We did get other insurance on her due to her attachment theripist doesn't take the state card. We had to get private insurance on her so we could still see the attachment theripist she has now and to get her on her sleep apena machine she also has. They said her state medicaid card will be pulled as of 30 July 09, so she will no longer get any services that are charged to the state medicaid card. Our private insurance won't cover the things she needs for her emotional care. I have no idea where we can go from here. I have tried to contact serveral people here in Wichita, KS to see where I can go for help. I have no idea, neither do they. I have a parent coach through the COMCARE SED waiver since my granddaughter has issues. The parent coach is there for support for me and my husband. She gets suggestions and goes with me for meetings. I had no reason to call her up and say that I was going to see the new caseworker, as I thought that was all it was. Needless to say, if I had to do it over again, I'd have her right there beside me. She told me that since they knew what they were going to do, that is why they did not tell me ahead of time. They knew that I would call my parent support coach and she would come to help me during the meeting. I have no idea where I can go now for support or help for my granddaughter. She has been acting out at her latchkey program she goes to this June and July. She has gone here to this program for the last two years, and she has not acted out. Now this summer she has thrown her tantrums and stompped her feet, told the workers she was not going to do something. They told me they have not seem this side of her and I'm glad that finally she acted out so someone at her school could see that side. I didn't want her to act out needless to say, but she does it here at home all the time, so I'm glad that she finally acted out so someone else could see for themselves what I was saying. So given that, that is why I haven't gotten on here and written much. I'm so lost. I'm so depressed with all this mess. My granddaughter is still acting out at home, stating she's going to run away, runs form us and goes out in the street riding her bike without a light at night up till 9:30 P.M.. I can't run after her! I'm too old for this I think. They say that God never gives you more than you can take..hum, I don't know about that! it seems I'm almost at my wits end here soon. I'll try my best to do better. Please put me and my granddaughter on your prayer list. I need the help and support of everyone I can get. I dont' know where to turn now for help. Only now God it is in his hands to help us. I know he will and I will let him tell me how.
Thank you Jesus for being there for us. I love you God, and I hope the way you see for me to go will come to me soon. In His name, Molliej.